with FOP in 2002 at the tender age of 2-1/2.
FOP is one of the rarest, most disabling genetic conditions known
to medicine. It occurs in approximately 1 in 1 million
people world wide.
It causes bone to form in muscles, tendons, ligaments and other
connective tissues rendering the person immobile.
Essentially frozen within a second skeleton.
In 2006, the FOP gene was discovered by the
FOP Lab at U of Penn. Since then, the IFOPA has been working
towards finding multiple therapies for those with FOP.
Please help us, Hayden and the FOP community on our
relentless mission to find a therapy and a cure for FOP
by donating to the In Pursuit of a Cure Fundraiser.
Please join us at an exclusive LIVE research webinar on August 30th.
There will be three time options available so you can hear updates on
gene therapy research and learn about research priorities.
This is an exciting opportunity to learn how your donation is
making an impact.
WE ARE RELENTLESS!