A Supplemental Needs Trust has been set up at Charles Schwab to help cover Hayden's medical costs. Funds from this trust will be used to supplement medical bills associated with the on going progression of and complications from FOP. Hopefully the funds will eventually be used for the surgeries needed to remove the extra/FOP bone from his body once a cure is found. In the event that a cure should not be found in Hayden's lifetime, the trust stipulates that all remaining funds be donated to the International FOP Association for FOP research.
Donations to the trust are not tax deductible.
Donations should be make out to:
Hayden D. Pheif Special Needs Trust
Trustees for Hayden's Trust are
Megan Olsen and John Pheif
Mail donations to:
Hayden D Pheif Special Needs Trust
c/o 164 Tamalpais Avenue
Mill Valley, Ca 94941
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Dedicated to raising awareness and research funds for a rare bone disease called F.O.P.(Fibrodysplasia Ossificans Progressiva).
Hayden's Hope
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ABOUT HAYDEN'S HOPE
Hayden's Hope is dedicated to raising awareness and research funds for a rare genetic condition known as FOP or Fibrodysplasia Ossificans Progressiva.
An annual fundraiser is held on behalf of the International FOP Association (IFOPA), a 501C3 non profit, to raise funds for research at the FOP lab at the University of Pennsylvania.
75% of funding for research comes from family fundraisers and donations such as yours. Your generosity goes a long way to help find a cure for this devastating disease.
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