Hayden's Hope

Wednesday, December 27, 2017

FOP Family Gathering

In the beginning of December, the Int'l FOP Association hosted a family gathering in San Francisco. The IFOPA started hosting family gatherings over 10 years ago.  The purpose is to bring together patients and families in a local region, in our case the West Coast, to learn about the latest FOP research, interact with the world's leading FOP clinicians and to connect with other patients, their families and caregivers.

There were people from Seattle, Sacramento, San Francisco, Fresno and Southern California.  We also had some FOP'ers come from other parts of the country.  It was nice to finally meet some of the friends I had made through the IFOPA's Facebook page in person.   Felt like catching up with old friends.

We heard from two different pharmaceutical companies on their current research and drug trails.  Hayden was also able to meet with the researchers and Dr. Frederick Kaplan to talk about his personal journey with FOP.

1 comment:

  1. I am here to give my testimony about Dr Ose  who helped me in my life, i want to inform the public how i was cured from (HERPES SIMPLEX VIRUS) by dr Ose spiritual, i visited different hospital but they gave me list of drugs like Famvir, Zovirax, and Valtrex which is very expensive to treat the symptoms and never cured me. I was browsing through the Internet searching for remedy on HERPES and i saw comment of people talking about how dr Ose spiritual cured them. when i contacted him he gave me hope and send a Herbal medicine to me that i took and it seriously worked for me, my HERPES result came out negative. I am so happy as i am sharing this testimony. My advice to you all who thinks that their is no cure for herpes that is Not true just contact him and get cure from dr Ose spirirtual healing spell cure of all kinds of sickness you may have. penis enlargement
    Remember delay in treatment leads to death email him @ {oseremenspelltemple@gmail.com}
    https://www.facebook.com/Dr-odion-spell-temple-110513923938220/ 

    ReplyDelete