Hayden's Hope

Thursday, September 12, 2013

Atlantic Monthly - The Girl Who Turned to Bone

The Girl Who Turned to Bone

Unexpected discoveries in the quest to cure an extraordinary skeletal condition show how medically relevant rare diseases can be.
By Carl Zimmer

Below is the article Carl Zimmer wrote that was published by The Atlantic.
On Monday, June 10th Jeannie Peeper the President and Founder of the IFOPA and Carl Zimmer were interviewed by Neal Conan on National Public Radio (NPR) Talk of the Nation to discuss The Promise In Unraveling The Mysteries Of Rare Diseases. To listen to the podcast of this interview or read the transcript please click on this link http://www.npr.org/2013/06/10/190398619/the-promise-in-unraveling-the-mysteries-of-rare-diseases
Today, June 13th 2013, the IFOPA board, members and staff are please to know changes are being made to help children and adults around the world who have a rare disease. Together we will find a cure to FOP!

This article is available online at:
If you would like to make a donation to the IFOPA to fund research to find a cure for FOP while supporting individuals and thier families through education, public awareness and advocacy please click on Donate Now.

3 comments:

  1. Yeah It's good I appreciate this article. I recommand it to my friends,I,ll be back here again and again . Visit our blog for more .

    ReplyDelete
  2. Hello There. I found your blog using msn. This is a really well written article. I will make sure to bookmark it and return to read extra of your helpful info. Thank you for the post. I'll certainly return.

    ReplyDelete
  3. We're a group of volunteers and starting a new scheme in our community. Your web site offered us with valuable information to work on. You have done an impressive job and our entire community will be grateful to you.

    ReplyDelete