Hayden's Hope

Thursday, November 24, 2011


It has been a roller coaster year in the Pheif house and we have so many things to be thankful for. 

We are so thankful for Hayden's health. He is still on continuous oxygen during the day and ventilator at night. Each month we go to see the pulmonologist to test his lung capacity and each month his lungs are slightly better than the last. We look forward to the day that he can go without supplemental oxygen and return back to his old life....but we take one day at a time. 

We are thankful for all of our family and friends who continue their support of us and Hayden. You all are so amazing and we really don't know what we would do without you.

We are thankful for Mt Tam School and families who have embraced Hayden and have been amazing at making him feel just like a normal kid.

We are thankful for Old Mill School and families who continue to support Elsa and help us guide her along life's unpredictable path...at an 8 year old's pace.

I am thankful to everyone at Carnegie Fabrics who have been there for me this entire time and made it possible to take five months off of work to be there for Hayden.

We are thankful to all of Hayden's friends, new and old, who embrace him for who he is and ignore all of the nurses and machinery that surrounds him. You are the ones that keep him going every day. You are the ones that make him a very happy kid. And at the end of the day, that is the most important thing of all...to be happy.

Happy Thanksgiving.


  1. This was such a beautiful post it kind of got me doing the hand-flapping thing so I wouldn't cry. (-: You have a beautiful family Megan and I'm so glad Mt. Tam school has been so supportive to Hayden and Elsa - it's such a great feeling as a mom to know your kids are in the right school, and that it's a loving place. (-:
    BTW ---> we made the "best of the blogosphere" for the My Friend Megan post, so more kudos! (-: It's here: http://cookieschronicles.blogspot.com/2011/11/best-of-blogosphere-november-2011-blog.html

    PS: The Blogher post is up and syndicated on www.blogher.com but it hasn't gotten the stampede of viewers I would've thought - under 100, so far! Anyway at least it's up there. (-:

  2. It was an honor to get to know Hayden's daddy as he helped us with our engineering woes. My daughter spent her childhood in hospital dealing with debilitating asthma. My heart goes out to Hayden and his family. Blessings on you all.