or discovering long, lost ancient ruins
any therapies or treatments.
Cancer and AIDS combined.
and community outreach
|Researchers in the FOP lab at University of Pennsylvania.
Meiqi Xu, Drs Frederick Kapkab and Eileen Shore
There are currently 9 ongoing drug trials for FOP treatments.
|Hayden Pheif, skiing in 2008, at the Far West
Disabled Sports Center in Alpine Meadows, CA
will go to "great lengths" to fundraise for research
|Team "Girls with Grit" ran the Napa Valley Ragnar
(36 hour - 206 Mile) Relay in September to as a fundraiser
for Hayden's Hope.
|Jeannie Peeper with Dr. Frederick Kaplan,
head of FOP research at U of Penn, at the 25th
anniversary IFOPA celebration.
These people are rare in a very special way.
They give us hope.
Even though the people afflicted with rare diseases