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Friday, September 17, 2010

Did you know?

This is the 8th year we have held a fundraiser for FOP Research.  Did you know that supporters for Hayden's Hope have raised over $850,000 dollars for FOP research?  That's amazing!!  Our goal for this year's fundraiser is to hit $1 million dollars in donations.  You can help us get there by coming to this year's event on Saturday, November 13th.  Look forward to seeing you there!

Wednesday, September 8, 2010

Congratulations to the Founder of the International FOP Association

Each year, the Central Florida Chapter of the Association of Fundraising Professionals (AFP) honors individuals and corporations that have made a difference in our communities. This year marks the 25th Annual National Philanthropy Day, an event which provides an opportunity to publicly acknowledge and express appreciation for these outstanding individuals, corporations and fundraising professionals in the community.  This year Jeanie Peeper, who founded the International FOP Association (or IFOPA), is being honored for her many years of dedication to raising awareness and research funds for those with FOP.

Only after Jeanie graduated from college did she learn that there were other people in the world with FOP.  Contacting some of those patients gave Jeanie the incentive to start the International FOP Association in 1988. In its infancy, IFOPA was first a pen pal group and also started to do fundraising for FOP research. Jeanie's goal for herself and others was to end the isolation of living with FOP.

As of 2010, the IFOPA has 725 members represented in 57 countries worldwide, with 285 international members (outside the U.S.) with FOP and 180 members with FOP living in the U.S. Thanks to this global community, they have been able to partner with other FOP organizations around the world, including ones established in Argentina, Australia, Brazil, Canada, Germany, Italy, Japan, Peru, Scandinavia, Spain and The Netherlands.

To learn more about National Philanthropy Day or the AFP, please Click Here.
Hayden's Hope fundraiser is held on behalf of the IFOPA.  To learn more about Jeanie and the IFOPA click here.