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Friday, December 5, 2014

A Hope for FOP & Hayden: FDA Approves Fast-Track Designation for Palovarotene


Clementia Receives Fast-Track Designation from FDA for Palovarotene


MONTREAL, Dec. 1, 2014
The IFOPA is pleased to share news that Clementia Pharmaceuticals received Fast Track Designation for palovarotene for the treatment of FOP.  This designation does not impact the clinical trial that is taking place for our FOP community.  To download and read the entire announcement please click on Clementia Receives Fast-Track Designation from FDA for Palovarotene.
   

Tuesday, December 2, 2014

Giving Back #GivingTuesday

Today is ‪#‎GivingTuesday‬, a global day dedicated to giving back. This year more fundraisers for the IFOPA were held via running events than ever before. Please consider donating to the Girls with Grit Run (http://haydenshope4fopresearch.blogspot.com/…/2014-haydens-…) & the Int'l FOP Association which will support the research efforts to find a cure for FOP. http://www.ifopa.org/donate-now.html.


INTERNATIONAL FOP ASSOCIATION
We just celebrated a day for giving thanks. In the USA we have two days for getting deals to purchase new items. Now, we have ‪#‎GivingTuesday‬, a global day dedicated to giving back. 

Today, December 2, 2014, people around the world will come together for one common purpose: to celebrate generosity and to give.We thank each of our donors, fundraisers, volunteers, members, advocates, doctors and researchers who give to the International FOP Association. Thank you for supporting our mission to fund research to find a cure for FOP while supporting individuals and their families through education, awareness and advocacy.Please click on this link to give today http://www.ifopa.org/donate-now.html and thank you for sharing this post which features some of our supporters who ran this fall to raise FOP Awareness and funds for FOP research.