Hayden's Hope

Saturday, July 9, 2011

Packing Up & Moving Out

Four Months ago today Hayden was intibated and put on a ventilator. It was one of the worst days of John's and my life. We cried because we knew the worst was a distinct possibility and you never want to see your child that sick. We have endured because of all of you. All of you nourished us with love, food, visits and support. We really do not know what we would have done to make it through these four months without all of you by our sides cheering Hayden on to get better.

So now we are ready to go home. Monday July 11th at 9am we are walking out of the ICU and never looking back. We've made some good friends here who we will always stay in touch with, but hopefully we will never see them in the "working" environment again. Hayden will go home with a ventilator and we are still working on getting him being comfortable breathing room air during the day so that then he would just have the ventilator at night.

Yesturday we started packing up. Check out those empty walls! We gently "de-decorated" the room yesturday and now Hayden's room feels so baren. All of the cards, drawings, posters have been taken home to be put in a memory book. All that is left hanging is the Giants Calendar and Hayden's target for Nerf Gun Target Practice.

Hayden excited about packing up. Check out the empty walls!

Lonely Giants Calendar

Target for Nerf Gun Target Practice


  1. Yay Hayden! Yay Megan and fam!! I am so happy for you guys - welcome home!!! Yahoo! We are all celebrating for you here in DC. xoxoxoxoxoxoxxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxox

  2. Hi
    My name is Jenna and i came across your site. Wow Hayden that is so exciting that you get to go home after four months! I am so happy for you! U are a courageous, strong and determined fighter. u are a brave warrior, smilen champ and an isnpirational hero. I was born with a rare life threatening bone disease, and I love it when people sign my guestbook. www.miraclechamp.webs.com