Hayden's Hope

Wednesday, July 11, 2012

One Year Later

Isn't strange when some one says you can't have it, you want it more. Or you can't do it and your determination gets in the way and makes it happen. That's how I feel about Hayden almost every day.

Today it has been one year since he came home from UCSF PICU. Thank you to all of you amazing doctors, nurses and respiratory therapists (and you know you are) who made bringing Hayden home a reality. 
He finished 6th grade, he's made new friends and kept up with the old, he's had easy days and hard days, but in the end he is happy and that is what matters most.

Special thank you to Dr. Kitterman who was there for us every morning at 7am rounds for 4 months straight. You are an angel!  And to Nurse Adrienne who was with him from the beginning and pushed the limits so Hayden could understand why he should live.
To all of Hayden's amazing nurses and respiratory therapists,  we miss you all and are a huge reason Hayden is here today.

To Hayden's doctor's, thank you for telling us the truth and not holding back. I know that is what gave John and I our determination to see him walk out of the hospital.
Thank you to our families and friends who still give so much to us and Hayden in terms of love and support.


Hayden and John at Stinson Beach for 4th of July.
Hayden's first sleep over away from home since being
in the hospital.


  1. Hey Megan, I have a few questions about Hayden,if you dont mind. I'm doing a report on F.O.P for my biology class.
    What are some of Hayden's hobbies and things that he likes to do?
    If any, is there anything that is hard for Hayden to do?
    Why is Hayden on a Respirator? Is it related to F.O.P?

  2. Megan, I'm so glad to hear Hayden is doing well. It's been way, way too long since I've seen him. You probably don't remember me, but I was Hayden's "Special Friend" when he was in kindergarten. I went online to find how he was doing because I'm actually including him in one of my college essays. While I was helping him through kindergarten, he helped me become a better person. He taught me a lot about myself, and really exposed a side of my personality that, at the time, was suppressed. I think he took on a bigger role than I realized in making me who I am today. Just thought I'd reach out to you, send my regards to you, Hayden, and the entire family. You guys are doing some awesome things. Keep going