Today is day 20 in the hospital. Our odyssey started at Marin General Hospital on March 1st. Sunday March 6th we went transferred to UCSF and on March 9th we made the difficult decision to put Hayden on a ventilator. Although being on a ventilator is not fun in any way, Hayden keeps himself occupied by watching movies, occasionally playing Wii and computer, but mostly lots and lots of sleep. Hayden does lots of hard and often painful work on the ventilator to help the doctors clear his lungs. He is very brave and a true champ. He is an inspiration to me.
A big thank you to the families at Old Mill School for providing wonderful dinners for John and I while we are at the hospital. Also a big thank you to all of the warm wishes and get well cards sent to Hayden. We have started decorating the room with them.