Hayden's Hope

Thursday, November 18, 2010

Thank You So Much

November 18, 2010

Dear Friends of Hayden’s Hope,

What an amazing evening last Saturday was. John and I enjoyed seeing so many of you there mingling with friends and catching up with ones you haven’t seen in a while. We had record attendance this year with close to 250 people attending. I am so excited to announce that the event raised just over $100,000!! That is absolutely fabulous. Your generosity will help to fund the ongoing research at the FOP Research Lab that Dr. Fred Kaplan told us about on Saturday evening.

The FOP Lab’s research budget of $1.5 million annually supports a core laboratory of 15 scientists as well as collaborators around the world. The FOP lab is funded 75% by family held fundraisers such as Hayden’s Hope. Each year, we struggle to find the funds to persist. But we need to do more than persist. We need to prevail and we will with your generous help, we will.

Better treatments for FOP are not just a dream – they are now a likelihood, and a cure is a distinct possibility. A cure to FOP, this unrelenting disease, will also mean a help for many other bone related disorders such as arthritis, osteoporosis, some heart valve disorders, certain spinal cord injuries, paralysis and more. The entire research team sees its work as a mission not just a profession.

Hope is a theme in the Pheif household. Every day we are hopeful for Hayden’s health, for the health of the FOP community and that the FOP laboratory receives enough funding to continue on their awesome journey to create a cure for this mysterious and unrelenting disease. Thank you so much for joining us in our quest.


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