HAYDEN'S HOPE

Your children can surprise you in the most amazing ways and at the most unexpected times.  Thank you Elsa Lilli for making Hayden's ...

14 years ago today, the most amazing person came into my life. Hayden was born at 7:30 am , the day after Mother's Day and had oddly...

rare /re(ə)r/ Adjective 1.) marked by unusual quality, merit or appeal, distinctive 2.) seldom occuring or found uncommonly Typic...

Cells Used to Model Disease that Causes Abnormal Bone Growth Researchers have developed a new way to study bone disorders and bone grow...

The Girl Who Turned to Bone Unexpected discoveries in the quest to cure an extraordinary skeletal condition show how medically relevant r...

Life can be challenging for all of us. Any mom can tell you that. At the end of each the day, I feel differently depending on how the da...

A fellow FOP'er was just listening to a Podcast and they talked about FOP. It was the Podcast "How Broken Bones ...