HAYDEN'S HOPE

Hayden Pheif 5.15.2000 - 8.6.24 Hayden Pheif was born on May 15, 2000. In September 2002, he was diagnosed with an ultra rare genetic condit...

This guy just takes my breath away. So much love. Hayden lived his life with courage, determination, stubbornness against a disease he didn’...

   rare /re(ə)r/   Adjective 1.) marked by unusual quality, merit or appeal, distinctive 2.) seldom occurring or found uncommonly Typically ...

  Hayden's life was permanently altered when he was diagnosed  with  FOP in 2002 at the tender age of 2-1/2.   FOP is one of the rarest,...

In Sept 2002, Hayden was diagnosed with FOP, a rare debilitating bone condition that will eventually leave him frozen in his own body unless...

      rare /re(ə)r/   Adjective 1.) marked by unusual quality, merit or appeal, distinctive 2.) seldom occurring or found uncommonly Typical...

In 24 hours, team Hayden's hope will be running the Dipsea Race in honor of Hayden and to raise awareness and funds for research.  Plea...