We've kept in touch with our friends we've made at the hospital. We met one of our favorite traveling nurses, Emily, who was in town from Boston, at Gott's a great hamburger place in the Ferry Building. It was so fun to see her outside of the hospital. It felt like we were old friends. We are meeting another one of Hayden's favorite nurses next week at Swirl for fronzen yogurt.
We've only gone back to UCSF Children's Hospital a couple of times for what ended up being minor issues. Strangely it was like going "home", which seems like an odd word to use. Now that we now know all of the staff at UCSF in the PICU and they know us, it feels comforting if the occasion arrises that we need to go there.
I still worry everyday that Hayden will get sick again or that somehow he will slip away in the middle of the night, like a mother worring about her baby having SIDS. But every morning I wake up and there he is. Sleepy and trying to wake up so he will get to school on time. We give each other a "good morning" hug and start our routine to get ready for school. Another day in the life of a remarkable boy.
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| Elsa & Hayden in December |
...*and* another day in the life of one remarkable mama. (-:
ReplyDeleteHi Hayden
ReplyDeleteMy name is Jenna and i came across your site. U are an amazing, precious gift, and a special earthly angel. U are an amazing, handsome courageous, determined, positive and strong fighter. U are an inspiration, brave warrior, and a smilen champ. U are a super hero, a super trooper and a tough cookie. U are full of life, spunk, joy, smiles, happiness, laugh, love, and hugs. U will be in my in my thoughts and prayers. I am sending hugs and smiles ur way. http://www.caringbridge.org/visit/champ291 I love it when people sign my guestbook. I have a rare life threatening bone disease.