When Hayden was in the hospital, during the darkest of days, I started reading my friend Adrienne's blog. I've known Adrienne since high school and she has always had a quick and humerous whit. Adrienne's blog is called The Momalog - Good Enough Parenting (http://www.themomalog.com/). I would read her posts late at night when I couldn't sleep and her words used to make me laugh so hard I would have tears in my eyes. It was such a great escape from what was really going on around me.
Adrienne has honored me and helped to spread the word about FOP by posting a piece I wrote back in April, when Hayden was so very sick and we weren't sure if he would be able to come home or not. Here is the link to the post. http://themomalog.com/2011/11/08/my-friend-megan/
Thank you so much Adrienne. I couldn't have gotten through the 4-1/2 months without your humor.
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Okay, wow ---> what a surprise! You are so sweet. (-:
ReplyDeleteI'm glad my blog gives you the occasional giggle. Everybody on my blog wants to read your whole blog now - so it is a bloggy love-fest - and I'm going to put a link in my blog to your blog. Hopefully we can do a little extra to raise more awareness in the world about FOP. (-:
xoxo A.
Aka Ado at The Momalog
Very sweet post -- and I loved your post at The Momalog, too! And I second your compliment: I love The Momalog's humor too: funny and heartfelt posts! (p.s. I envy your IRL friendship!)
ReplyDeleteLoved the post. Thank you for doing what you do. I am so grateful for those who have been promoting research before us so that our own little Addi has a chance. Your Hayden has an inspiring smile. Thanks for giving me hope.
ReplyDeleteHayden's smile melts hearts. What a beautiful and brave little boy! And you are an amazing Mom.I read your inspiring post on on Ado's blog (love her!). In December I am planning to do a post on my blog featuring two children with SMA (spinal muscular atrophy). I am a picture book author and illustrator and the two children were models for one of my books. With your permission, and with the hope of raising awareness for all children with rare diseases I would be happy to include a link to your blog. Let me know if that would be ok: iza@izatrapani.com
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