In Pursuit of a Cure 2023

 

Hayden's life was permanently altered when he was diagnosed 

with FOP in 2002 at the tender age of 2-1/2.  

FOP is one of the rarest, most disabling genetic conditions known 

to medicine.  It occurs in approximately 1 in 1 million 

people world wide.

It causes bone to form in muscles, tendons, ligaments and other 

connective tissues rendering the person immobile.  

Essentially frozen within a second skeleton.

In 2006, the FOP gene was discovered by the 

FOP Lab at U of Penn.  Since then, the IFOPA has been working 

towards finding multiple therapies for those with FOP.

Please help us, Hayden and the FOP community on our 

relentless mission to find a therapy and a cure for FOP 

by donating to the In Pursuit of a Cure Fundraiser. 

DONATE HERE

Please join us at an exclusive LIVE research webinar on August 30th. 

There will be three time options available so you can hear updates on 

gene therapy research and learn about research priorities.  

This is an exciting opportunity to learn how your donation is 

making an impact.  

REGISTER FOR WEBINAR HERE

WE ARE RELENTLESS!