HAYDEN'S HOPE

Hsiao Lab at the University of California, San Francisco The  Hsiao Lab at UCSF  has a variety of ongoing clinical studies related to the...

grit /ɡrit/ noun noun:  grit 1. small, loose particles of stone or sand. "She had a bit of grit in her trail sho...

Every year, April 23th is the FOP Awareness Day.  This year is even more special because it marks the 30th anniversary of the founding of ...

Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to ...

John and I are so excited about this. Hayden is enrolling in the drug trial at UCSF in 2 weeks.  Fingers crossed.

In the beginning of December, the Int'l FOP Association hosted a family gathering in San Francisco. The IFOPA started hosting family gat...

Please support me on my Dipsea run honoring Hayden and FOP research by donating to the International FOP Association.   Click here  to make ...