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Wednesday, May 31, 2017

Hayden's Hope - 2nd Annual Dipsea Run for FOP Research #cureFOP

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Please support me on my Dipsea run honoring Hayden and FOP research by donating to the International FOP Association.   Click here  to make ...
Saturday, March 18, 2017

Dr. Frederick Kaplan honored by NORD with the 2017 Rare Impact Award

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NORD Announces Honorees for the 2017 Rare Impact Awards  Posted by Jennifer Huron Washington, D.C., March 15, 2017 —The National Organ...
Tuesday, February 28, 2017

Rare Disease Day 2017

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rare /re(ə)r/   Adjective 1.) marked by unusual quality, merit or appeal, distinctive 2.) seldom occuring or found uncommonly Typic...
Monday, October 31, 2016

International FOP Association Hosts Drug Development Forum

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The IFOPA hosted the second Drug Development Forum Oct. 24 to 25 in Boston, Mass. The very popular Forum brings together both academic and ...
Thursday, June 30, 2016

Thank you

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Thank you so much to all of the supporters of Hayden's Hope Dipsea run.  We raised $10,000 for the International FOP Association (IFOPA)...
Tuesday, May 3, 2016

Running in Honor of Hayden

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Please support me on my Dipsea run honoring Hayden and FOP research by donating to the International FOP Association.  Click  here  to make ...
Monday, May 2, 2016

Quieting cells' low-oxygen alarm stops flare-ups in rare bone disorder

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PUBLIC RELEASE:  2-MAY-2016 Quieting cells' low-oxygen alarm stops flare-ups in rare bone disorder UNIVERSITY OF PENNSYLVANIA SC...