HAYDEN'S HOPE

Well the Trach went fabulous. It’s so wonderful to see his beautiful face again. Hayden’s vitals were strong during the entire operation. He...

Some of you may have already correctly guessed that I am actually really going to nursing school here at UCSF. I am moonlighting as a mother...

So you may be wondering "What happened to "Family Meeting #2? I never read a post on that one." Well I didn't write about...

I have a love hate relationship with the CO2 monitor in Hayden's room. This is the machine I look at right before I go to sleep, in the ...

I had such a wonderful mother's day! I woke up to my beautiful Elsa Lilli looking at me asking when I was going to get up - love that gi...

I am the happiest mother alive today. Hayden’s prognosis has always been tentative. A child with restrictive lung disease coupled with pneum...