HAYDEN'S HOPE

Three steps forward, two steps back, one step forward, two steps back....I just wish I could put on my Ruby Slippers and click my heals toge...

Hayden got a great care package from Old Mill School today.  A bunch of get well cards made by his 5th grade class mates and their special K...

Today is day 20 in the hospital.  Our odyssey started at Marin General Hospital on March 1st.  Sunday March 6th we went transferred to UCSF ...

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A disease or disorder is defined as rare in Europe when it affects less than 1 in 2000. A disease or disorder is defined as rare in the U...

Looking back on 2010 we are thankful for all of your ongoing support for FOP research.  Hayden's Hope Picture a Cure event brings a smil...

Alone we are rare. Together we are strong.  Join NORD in creating awareness for Rare Disease Day.  Learn all the ways you can support 30 mil...