HAYDEN'S HOPE

Dear Friends of Hayden’s Hope, We are so excited to bring you this year’s benefit, “Picture –A- Cure” on November 13th. We are less than a...

This is the 8th year we have held a fundraiser for FOP Research.  Did you know that supporters for Hayden's Hope have raised over $850,0...

Each year, the Central Florida Chapter of the Association of Fundraising Professionals (AFP) honors individuals and corporations that have m...

Some interesting facts about FOP.  Did you know that the earliest documented cases date back to the 17th and 18th centuries? In 1692, Fren...

National Organization for Rare Diseases NORD - Press Release July 21, 2010 WASHINGTON DC-----An advocate for people with rare diseases t...

John Crowley, whose family’s story is portrayed in the feature film Extraordinary Measures starring Harrison Ford and Brendan Fraser, announ...

Its hard to believe that a little over 10 years ago Hayden was born.  A few weeks ago we celebrated his 10th birthday.  As I look back to Ma...